You'll find hundreds of files on cleft lip, cleft palate here on widesmiles.org.

This one is about: A Parent's Guide to Cleft Lip and Palate


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A PARENT'S GUIDE TO CLEFT LIP AND PALATE

Authors: Karlind T Moller MD, Clark D Starr MD & Sylvia A Johnson
Published by University of Minnesota Press, Minneapolis, MN
Cost: $15.95

Reviewed by Joanne Green

I remember five years ago when I discovered that I was to become the mother of a child with a cleft lip and palate. I was anxious to gather whatever information I could to ready myself for the task and to help myself prepare to make good decisions for my son. But my efforts were met with frustration. Simply put, good, practical, understandable and comprehensive information was just hard to find.

It was from those early days of frustration that I can appreciate A Parent's Guide to Cleft Lip and Palate. Put out in 1990 by the University of Minnesota Press, it is a comprehensive, informative and clearly written account of all the in's and out's of parenting a child with a cleft.

This book begins with a discussion of definition and etiology and systematically continues through the need for an interdisciplinary team, to surgical repair, feeding issues, ear problems, tooth development, speech, psychosocial issues, genetics, and the appropriateness of an optimistic philosophy. A very helpful glossary of terms follows the 
textual content, as well as a listing of pertinent resources. This is truly the most comprehensive resource available under one cover to parents of children born with cleft lip and palate.

I found the language to be readable and informative. The diagrams are easy to follow and the pictures of children are natural and not clinical. I strongly felt as I read this book that the authors have a healthy respect for our children as well as for us as parents. They took pains to refrain from inundating us with technical jargon, nor did they talk down to the reader.

This book should be in the libraries of every cleft support group, if not every parent. It contains information that touches the lives of families throughout the growing process of our children with cleft lip and palate.

If I had found this book five years ago, my quest would have been over and my need to understand satisfied. I highly recommend this valuable resource.


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