You'll find hundreds of files on cleft lip, cleft palate here on widesmiles.org.
This one is about: Goldenhar's Syndrome / Boy on Barney
(c) 1996 Wide Smiles
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December 12, 1996:
I would like to hear from others whose child has features of either syndromes.
Hi! My son, Bryan, had his palate surgery at the end of September. We don't have any symptoms of Goldenhar's, but I know someone who does. Kurt Dykhuizen, who plays Jason on Barney and Friends, has Goldenhar's Syndrome. He is eleven years old, and has had 17 surgeries. He has had a jaw distraction (for hemofacial microsoma), cleft palate repair, spinal fusion, mylocele closure and 5 ear reconstruction surgeries. He has a conductive hearing loss, but hears very well with aids. His mother, Beth Dykhuizen, is a wonderful woman who would love to provide you with a wealth of information about what it is like to have a child with Goldenhar's. Her address is:
Plano, TX 75075
As far as I know, she does not have an Email address.
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