You'll find hundreds of files on cleft lip, cleft palate here on widesmiles.org.

This one is about: Goldenhar's Syndrome / Boy on Barney


(c) 1996 Wide Smiles
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December 12, 1996:

Question:

I would like to hear from others whose child has features of either syndromes.

Answer:

Hi! My son, Bryan, had his palate surgery at the end of September. We don't have any symptoms of Goldenhar's, but I know someone who does. Kurt Dykhuizen, who plays Jason on Barney and Friends, has Goldenhar's Syndrome. He is eleven years old, and has had 17 surgeries. He has had a jaw distraction (for hemofacial microsoma), cleft palate repair, spinal fusion, mylocele closure and 5 ear reconstruction surgeries. He has a conductive hearing loss, but hears very well with aids. His mother, Beth Dykhuizen, is a wonderful woman who would love to provide you with a wealth of information about what it is like to have a child with Goldenhar's. Her address is:

Beth Dykhuizen
1528 Bamburgh
Plano, TX  75075

As far as I know, she does not have an Email address.

Take care,
Leigh


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