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This one is about: Mandibular Jaw Advancement (or Distraction)
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Mandibular Jaw Advancement (or Distraction)
From one family's experience:
Mandibular advancement or distraction osteogensis is used on a child when there is underdeveloped jaw (BTW - They are using this on the upper jaw also). Basically, they place a surgical cut through the bone on the affected side (if necessary both sides), and apply this device on the outside of the face to maintain stability. One week post op, the parents start to separate the 2 bone pieces 1mm/day until they doctor says enough.
My daughter had her left side of her expanded by 25.5 mm (little over an inch) when she was 2-1/2 y/o. When she was two, she had a bone graft since she was missing the left side of her jaw. The jaw advancement was a walk in the park compared to the bone graft.
I know conventional wisdom says to wait for jaw surgery until the child is about 11 years but with mandibular advancement at this age the jaw bone becomes stronger, studies have shown it is better to do at this age since the surrounding structures become aligned.
In my daughter's case, she will get her trach out in late spring, and currently she has a closed bite (not bad for the worst classification of jaw deficiency). Psychologically, it is a tremendous benefit to the child to have this done prior to school.
The bottom line ... check with your craniofacial team. I do not know too much about PRS since my daughter has hemifacial microsomia.
I have a file cabinet full of professional publications (articles). I would suggest to go to the following web sites: National Institute of Health - grateful med
Look up the following subjects:
As far as the above is concerned, what I did was to review the abstracts. If anything interest me, I went to a medical Library or the Regional NIH library. (I'm lucky since I live in the suburbs of NYC.)
Also, for the layperson, go into NYU Medical Center's Web site at
This site provides a little information about distraction osteogenesis that is somewhat readable. Good luck.
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