Clefts and Other Syndromes

Wide Smiles Syndrome Page: Info/Stories on Amniotic Banding, Hemifacial Microsomia/Goldenhar Syndrome, Pierre Robin, Tessier Facial Clefts and more to come.

Wide Smiles Support Section: Lots of online and offline resources

General Information:
Isolated Cleft - Basic Info on Cleft Lip and Palate When Not Associated with Syndromes
Clefting and Mental Retardation
Syndrome Vs Sequence
Syndrome Vs Sequence: Another Definition
Birth Defect Statistics
Syndromes/Conditions listed Alphabetically:
Arhinia Information
What is Apert Syndrome?
What Is Apert Syndrome (2)
What is Bells Palsy?
CHARGE Syndrome: What is it? What Can We Do About It?
Constriction Band Syndrome
Crouzon Syndrome
Crouzon Syndrome Defined
DIGEORGE Syndrome
Duane Syndrome
The Freeman-Sheldon Parent Support Group
(Clefts & ) Fused Fingers/Toes or Not in Normal Positions
Goldenhar Syndrome / Boy on Barney
Heart Murmurs In Children with Clefts
Information on Hemifacial Microsomia (Goldenhar)
Hemifacial Microsomia Defined
Hemangioma (Not Cleft Related)
Hemangioma Basic Definitions
What is Holoprosencephaly?
International 11:22 Translocation Network
Kallmann Syndrome: Clefts plus Endocrine Pituatary Problems, often Median Facial Clefts, Sex Organ Problems
OPTIZ G: support - Opitz Family Network
Oral Facial Digital Syndrome Type I
Short Stature and Clefting, Midline Defects
Definition of Stickler Syndrome
What Is Van Der Woude?
Van Der Woude's Syndrome
RELATED LINKS:

Teeter's Page -- The Apert Syndrome Resource http://www.apert.org/
Noteworthy - Info and lots of linked pictures and stories -- like our gallery

Klippel-Feil Syndrome Network http://members.aol.com/kfsconxpgs/index.htm
Klippel-Feil Syndrome describes congenital fusion of at least two of the seven vertebrae in the cervical-spine. In addition there may be fusion or anomalies of vertebrae in the thoracic or lumbar-spine.

Genetic Syndrome Support Groups Online and other Health-related WWW Sites
http://www.mostgene.org/

Velo Cardial Facial Syndrome Educational Foundation

http://www.vcfsef.org/

The Syndromal Child, can be viewed as either a Webpage or Power-Point Presentation

Google creates the webpage from a PDF file (Adobe Acrobat Reader). The font size is large but there's a lot of information regarding different craniofacial syndromes. The Power Point file includes pictures as well.

http://216.239.53.104/search?q=cache:7vbP9pxstlQJ:www.utmb.edu/otoref/Grnds/Syndromal-Child-2001-05/Syndromal-Child-2001-slides.ppt+apnea+reduction+surgery+cleft+palate+speech&hl=en&lr=lang_en&ie=UTF-8