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Ryan was born on May
18, 2000 with a bilateral cleft lip and palate. His cleft was a complete
surprise to us, but we are handling it. He will have his first surgery (lip
repair/ear tubes) on July 27, 2000. Ryan's pictures are presented to you by his
parents, Rick & Kali.
|Mom and Dad awaiting Ryan's arrival (with
their cool hats on!).
This is Ryan at 1 week old.
is Ryan with his brothers, Mike (10), Kyle (6) and sister Meghin (7).
Ryan's first smile. Isn't he
A note from Ryan's mom, Kali...
When Ryan arrived we didn't know about the
cleft (I didn't know what a cleft was). The Dr said out loud "We have a
cleft..." It was hard and I wanted to breastfeed but he had a complete
Bilateral cleft lip and palate and couldn't suck. Everything else was working
great; he even tried to pee on the nurse right away :-) lol. So that 1st day we
tried all different nipples and bottles we were getting about 30cc in him and
thinking that was good. He was 7 lbs at birth and 6lb 9 oz when we went home.
Before we left the hospital they had our appointment ready for us to meet our
team at Children's Hospital. They are great!!! The nurse there gave us another
bottle to use -- the Mead Johnson with the orthodontic nipple (that we cut
larger) and a time line. Let me just say that once he started eating he was in
heaven. I did try the pumping and feeding but my milk supply went down very
quick, so we went to formula at about 2 weeks old.
We just had our 2 month visit with the
pediatrician. Ryan got his shots and weighed in at 10-1/2 lbs., and 23 inches
long. Big boy :) Now in a week we will start the process of lip surgery the lip
and tubes in his ears. I am a nervous wreck...
|July 27, lip repair. Ryan is 2 months.
This is right out of surgery, we had just been
put into a room. Ryan was a sleepy boy that whole day...
Here is Ryan and dad the night
we came home from the hospital. I think he just really wanted those arm
Another picture of Ryan just a
day after surgery.
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