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Ryan M.

Ryan M (our little hero) Presented by: with all our love Mommy (Margie M), Daddy (Bill), Casey and Erin. I hope these photos are helpful to anyone going through what we have been through. I tried to choose ones that showed some of the medical apparatus they used with Ryan. I also chose some that showed how adorable he is. A quick background on Ryan: Ryan was born with Pierre Robin Sequence and other medical problems.

This is OUR LITTLE HERO Ryan M shortly after birth, right before they whisked him away to the Neonatal Intensive Care Unit. Ryan was born with Pierre Robin with a cleft of the soft and hard palate. You might notice the small bottom jaw, a feature of Pierre Robins.

Here is Ryan at two days old. Daddy finally gets to hold him for the first time. He is still on the ventilator at this point. He was very hard to intubate, so they put Daddy off two days before he could hold him, but one of the older neonatologist told the nurses to "let Daddy hold him, they both need it." (By the way, mommy is across town still in another hospital hasn't seen me except for polaroids since noon the day I was born.)

Day four, and the moment Mommy and me have been waiting for. Mommy was finally discharged and came right here to hold me for the first time. I have been taken off the ventilator and am now breathing on my own with the help of the oral airway. That is the thing you see sticking out my mouth. This thing holds my tongue down so that it cannot flop back and block my airway, another problem Pierre Robin babies have at first.

Not a happy moment for me. I am now 7 weeks old and have just had a trach placed. This is shortly after the trach surgery. After they put the trach in they were able to hook my ventilator up to the trach- that is the tubing you are seeing. This all happened as I was recovering from RSV pnemonia. As you see I am hooked up to everything I think the doctors could think of. I had a central line at this point in my leg so they didn't have to keep sticking me for those dreaded I.V.'s.

Finally off the ventilator once again. Mommy is about to bring me home again. You can see the trach pretty good in this picture. That thing on the trach is a thermovent; it helps moisten the air I breathe since it now surpasses the nose (the usual way our our air gets moistened when breathing.)

These are my sisters, Casey (the blond) and Erin (the brunette) . They just love me to pieces.
I think this is September 1996, so I am 5 months old
.

Here are those girls holding me again. They just can't get enough. I am 6 or 7 months old here.

Here I am smiling away. I didn't do this very often so mommy really had to work to get  this picture. See all my teeth and nothing to do with them, but maybe bite those doctors :-)

My first Christmas morning. I am battling RSV pnemonia again, but mommy insisted I be home since I am doing well with my oxygen.

Help! They have me packed in this chair so tight I can't move. And they call this therapy! 
Here is a really good view of the trach (as usual my O2 has fallen off). Look how nicely my jaw has grown out.

My first birthday, April 26, 1997
What do they expect me to do with that thing?

I am not putting that in my mouth!
Maybe by my second birthday I will be eating by mouth.

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