PIERRE ROBIN SEQUENCE

A New Parents' Guide

Overview

The aim here is to give you an outline of Pierre Robin Sequence, some of the situations you may encounter and some direction in preraring questions to ask your child's medical team.

This guide will not tell you all you need to know. Pierre Robin problems are not the same for all children and some of the information here may not be relevant to you.

More information can be sought by following the links provided or, for more technically specific information, by accessing the medical journal articles listed in the reference pages.

These pages are dedicated to my nephew Evan (pictured), born with Pierre Robin Sequence. With so little information easily available, a search through the medical literature was essential and has subsequently progressed to the development of this guide.

Michelle Cruse.


CONTENTS

What is Pierre Robin Sequence?
Causes
Airway Management
Feeding Your Baby
Other Things That May Crop Up
Tests
Palate Repair Surgery
On-going Reference List A-K and L-Z
Personal Stories
Wide Smiles Photo Gallery


Back to syndromes and related conditions

Pierre Robin Resource

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Author: Michelle Cruse, R.N., B.Nurs., M.C.N.(N.S.W.).

Any suggestions, thoughts, tips or feedback would be most welcome, so, please feel free to Email me.


michey@terrigal.net.au

Copyright © 2000, Michelle Cruse, Last Updated - 26/01/2000 15:59:47